Friday, September 26, 2008

Ninja Boy in Action


Brody, and his friend Kenna, participated in the Karate America demonstration at the Culver's Kids Day recently. In this photo, Brody is showing off his jump kick and flexibility. Gotta love those action photos!


And yes, those silos and corn field in the background do mean there is a farm right in the middle of town. It is situated quite nicely between Culver's and the Hospital. Only in Wisconsin folks!

Wednesday, September 24, 2008

Feeling Blue =(

First of all, why is it that bad things always happen when the hubby is away? Shane is out of town for 3 days for work, so of course I just had to come down with a nasty cold/sinus congestion/asthma flare-up. And of course I'm sure the boys will come down with the same thing any minute now...because they always do.

But unfortunately that's not really the topic of this post. Today Brody jumped into the car after school and was visibly upset about something. He said, "Today was the worst day ever". Now this isn't the first time he has come home from school saying this. Usually it involves one of his classmates unexpectedly bringing in a treat for the entire class that he couldn't have or he often feels lonely because his friends don't want to sit with him at the Peanut-Free table in the cafeteria. So I braced myself and asked why he felt this way today. Turns out his friend "disinvited" Brody from his birthday party this weekend! As in a party 3 days from now which Brody has been looking forward to for several weeks! A party that the mother had told me about weeks ago and said she would call me at some point this week to go over the whole food allergy aspect. My guess/suspicion/gut feeling is that she decided it would just be much easier to not have Brody there rather than try to accommodate him. Which if she would have called me, I simply would have gave her a crash course in allergic reactions, what symptoms to watch out for, and how to use an EpiPen just in case. Then I would have provided Brody with his own snacks/cupcake anyway. How difficult would that have been?

What I really don't understand is how any mother can possibly think that uninviting a child to a party wouldn't hurt him emotionally? Especially Brody. The fact of the matter is that Brody never gets invited to birthday parties for his classmates. EVER. This was honestly the first time he got an invitation and it was also going to be the first time I let him stay at a friend's house by himself (without me hovering) for a couple of hours. He was very excited by this prospect and wants so badly to be more independent...no matter how hard it is for me to let go and trust others with his life.

So Brody cried because he feels his so-called friend doesn't want him at his party and all he desperately wants is to feel included. Instead, time after time he's excluded and left to feel very hurt and alone. I cried because my heart was breaking for him and also because I know this won't be the last time something like this happens. Josh is angry about the whole situation and thinks I should "just call the friend's mother and yell at her". Well, the thought certainly crossed my mind, but of course that's not the correct way to deal with this. Although I'm not entirely sure what the correct way to handle this is other than to keep hugging Brody and reassuring him that it's okay to be upset/hurt/mad/sad and that tomorrow will be a better day. I hope! (Gee, I seem to say that quite often.)

Thursday, August 28, 2008

Allergy Friendly Cakes

---------------- Gluten-Free Wedding Cake------------------

I've been decorating cakes for about 15 years now. Through word-of-mouth I ended up getting calls for quite a few cakes over the years until I finally just didn't have the urge or ambition to do it any longer. However, about 6 months ago I decided that I would love to decorate cakes for children (or adults) with food allergies or other dietary restrictions because I know a lot of these kids don't get to experience what it's like to have a really cool decorated cake for their birthday celebration. Since then I have been asked to make a few gluten-free cakes and also several milk-free, egg-free, nut-free cakes. In fact I was just recently asked to make the small wedding cake pictured above for a bride-to-be and her daughter who need to avoid gluten products.
If you'd like to see some of my other cake creations, check out my online photo album at http://public.fotki.com/vah/!

Monday, August 11, 2008

2008 Food Allergy Awareness Walk





Brody's Team!!






Lots of families came to the event to show their support.











Even Grandma came to walk with us!










Brotherly love!











A great time was had by all.

Tuesday, July 29, 2008

The Good, The Bad, and The Ugly

The Good news is that Brody was quite happy with the way things turned out at the In-Office Food Challenge today.

The Bad news is that Brody failed the skin prick test and is very much still allergic to almonds.

The Ugly news is that Brody was prescribed yet another medication for his allergies/eczema/asthma. I believe this brings the total of medications in his daily arsenal up to about 12. Ack!! You wouldn't even want to know how much we spend on prescription co-pays every month between both boys and myself!

So why was Brody happy about the outcome today? Because for the past several weeks he has been terrified of the thought of actually eating a nut since his entire life we have driven the fact into his brain that he is deathly allergic to all tree nuts. I honestly really had no idea how we were going to manage to get him to even put a teeny-tiny bit of almond in his mouth today. But it turned out the skin prick test was positive after all, so that was the end of the the IOFC. Dr. Gern actually said it was an "iffy positive" and that Brody probably had a 50/50 chance of having an allergic reaction. I told him I didn't like those odds and he agreed wholeheartedly. He then mentioned that maybe in a year or 2 we could probably try again...to which Brody chimed in and said "how about 5 or 6 years instead"! =)

The only reason I had hoped Brody would pass the almond challenge was because it would have been another good source of protein and healthy fats for him, plus the thought of adding almonds to cookies and other goodies sounds awful tasty to me! Oh well, we've lived 8 years without any nuts. I suppose it really doesn't matter at this point!

Wednesday, July 23, 2008

Send us some good vibes, please!

Next Tuesday Brody will be undergoing an In-Office Food Challenge (IOFC) for Almonds at the UW Hospital. (For more information read "The Results Are In...", posted on June 11) He's feeling very apprehensive and anxious about the whole situation. Me too!! I keep reassuring Brody that Dr. Gern wouldn't be willing to put him through this if he thought there was any chance that Brody will fail the challenge and have an allergic reaction. I do think the chances of Brody having a panic attack during the challenge is highly probable though, which could easily look like anaphylaxis.

In any case, we could really use some good vibes, thoughts, and prayers coming our way! Stay tuned to find out how it all unfolds next week.

Saturday, July 5, 2008

Parade & Fireworks in Pardeeville




Hope everyone had a safe and Happy 4th of July!