Wednesday, November 25, 2009
This would be an excellent site to keep in mind with holidays fast approaching!
Here's what another member of our group had to say about Peanut Free Planet:
"Peanut Free Planet is a terrific company. Ordering from them is a breeze and I am never dissatisfied. Twice a year my friends and I group an order together and easily place it online. It is a joy to find such a plethora of peanut and nut free items that look and more importantly TASTE the same as the nut contaminated ones we have locally. Our favorite is the Quaker Oats chocolate chip granola bars. Others are the mass number of candy bars that are allergy friendly, too. Peanut Free Planet is one of the only places I can order Kit Kat candy bars for my daughter...and they are peanut/nut free, which is what she needs. My non-allergic son can go to the local store and eat any candy bar off the shelf. My daughter can't. What is so 'big' about a sugary, sweet candy bar? To me, not that much... but to my daughter, it's everything. Just to have the same as all the other kids, especially her brother.
Just to be the same, that is where I fell in love with PFP! They have the exact same allergy-friendly items that I need. Last year my daughter got a Kit Kat in her stocking, she knew right away....Santa shopped at Peanut Free Planet!"
Sunday, November 1, 2009
Notice the black belt...don't cross the Kungfu Pup!
We had a great time at the annual Food-Free Fall Carnival put on by the Food Allergy Association of Wisconsin!
The Blizzard Wizard and Tinkerbell stopped over to say "Hi"!
Tuesday, October 27, 2009
Wednesday, October 21, 2009
Here are the special offers that I have found so far. If you know of any others, please leave a comment!
Save up to $15 per refill.
Up to $25 off your prescription and refills. Can use up to 6 coupons per year.
Offer limited to 4 prescription refills per year.
The coupon states it is for the Advair Discus (which contains a milk ingredient!), but I have verified with the company that the coupon is also good towards the Advair HFA inhaler. This coupon can be used monthly.
Not a coupon for the actual medication, but sign up here for a free Xopenex inhaler holder.
$15 instant savings coupon
$2 and $4 coupons
5 day free trial prescription
http://www.singulair.com/montelukast_sodium/singulair/consumer/r/for_adults/savings_offer_for_singulair/index.jsp Save up to $20.
Friday, October 2, 2009
What is it like to have a deadly allergy? Nick News investigates.
Wednesday, September 23, 2009
Saturday, August 22, 2009
Linda Coss, author of several food allergy cookbooks, has written an excellent article about why it is important for schools to implement food allergy policies to keep our children safe. It also is written in a way so that parents of “all the other kids” can hopefully understand why these safety measures are needed rather then simply telling the food allergic children “just don’t eat what you’re allergic to”. I personally plan on forwarding this article to the principal at my son’s school in hopes that she will send copies home with all of the children in his class to pass on to their parents.
Click here to read "Attack of the Killer Peanut Butter Sandwiches" :
Tuesday, August 11, 2009
UW Marching Band
Thursday, July 30, 2009
Wednesday, July 29, 2009
The day after Brody asked me all those questions about his allergies, I decided we should dig out one of his expired EpiPens and practice injecting it into an orange to refresh his memory of how it all works and then we used an EpiPen trainer to do some role playing. He seemed to feel much more at ease and satisfied after we did this. As parents it is up to us to educate and prepare our children for how to keep themselves safe and healthy, and for Brody that includes knowing how to save his own life with an EpiPen.
Monday, July 27, 2009
"Our study showed that IL-33 plays a pivotal role in hugely increasing the inflammation experienced during a period of anaphylactic shock and led us to understand how to intervene to reduce its impact.
An anaphylactic shock prompts a massive inflammatory reaction which often is so severe that it constricts breathing. In our study we found that the severity of the shock is linked to the IL-33 molecule, which acts as an amplifier to the inflammatory reaction. This can lead to a fatal constriction of the airway and, ultimately, death.
Our study suggests that patients with the most severe anaphylactic reactions have very high levels of IL33 in their system.
In basic terms, without the IL33 molecule, the allergic reaction experienced would be far less severe, greatly reducing the risk of death."
Read full article here: http://www.medicalnewstoday.com/articles/158771.php
Saturday, July 25, 2009
Tuesday, July 21, 2009
Saturday, August 8, 2009
9:00 A.M. Registration
2930 N Sherman Ave
Build Your Team or Register!
1. Go to www.firstgiving.com/foodallergywis
2. Click on "Register for an Event"
3. Select "Food Allergy Walk"
4. Select your registration type.
5. Log in or create an account.
6. Find a team to join or create a new team.
Food Allergy Association of WI
2722 Union Street
Madison, WI 53704
Fax your registration and credit card information to:608-249-5215
Create a t-shirt with your child's picture or show your allergies with signs, posters, and team shirts.
Send your friends, family members, and co-workers messages asking them to support your own fundraising efforts. Ask your company if they have a program to match your donation.
Saturday, July 4, 2009
"In October 2008 TMH announced a non-exclusive development, licence and supply agreement with Catalent Pharma Solutions and Stallergenes to develop and distribute a variation of the company’s core disposable autoinjector technology for use with epinephrine. Under the terms of this agreement, TMH will customise its proprietary, patented ASITM disposable autoinjector device technology, according to an agreed specification and will be combined with epinephrine supplied by Catalent to create epinephrine autoinjectors for both adult and paediatric use.
These epinephrine autoinjectors are intended for the emergency treatment of anaphylactic shock, mostly due to hymenoptera venom or food allergies and for the use by patients themselves or by a person close to the patient in the event of an emergency. The newly-created product will be distributed exclusively by Stallergenes who are a European biopharmaceutical company, with annual sales in 2007 of ?? million, dedicated to desensitisation therapies for the prevention and treatment of allergy-related conditions. The Agreement covers 13 European countries, including the United Kingdom and incorporates provision for extension to additional territories."
Read entire article here... http://www.pharmalive.com/News/index.cfm?articleid=637156&categoryid=54
Thursday, July 2, 2009
Wednesday, July 1, 2009
I'm also bothered by the fact that he states in the video that this would be considered a "mild reaction". According to the Anaphylaxis Grading Chart , this reaction would absolutely be considered anaphylaxis. Luckily this man recovered and now we can use his video as a teaching tool for ourselves and others.
Saturday, June 27, 2009
Unfortuantely his milk score is still >100...and always has been. I personally don't believe he will ever outgrow this allergy. It's just pure poison to his little body. Such a hard one to deal with considering just walking into a grocery store means that over 75% of everything on the shelves contains some form of milk or could be cross-contaminated with milk (not to mention all of his other allergies), but for now I'm choosing to focus on the good news of possibly outgrowing egg! Can you imagine my excitement of possibly some day making a cake with eggs again?!!!!
We didn't bother re-testing tree nuts or shellfish this year, but oddly enough, Brody's peanut score dropped quite a bit. I'm in no way getting myself excited about that one because A) the number is still high, and B) only 20% of children outgrow peanut allergy by school age...and Brody is already 9. (How can he already be 9?!) If I could choose, I would much rather he outgrow milk than peanut any day! At this point though, I doubt either will happen.
I just have to keep reminding myself to focus on the positive, focus on the positive, focus on the positive...
"...the cell-based method "eliminates the rare but vexing problem of egg allergy" that means some people can't take a flu vaccine."
Thursday, June 4, 2009
By the way, my darling husband did not realize that if you turn the digital camera vertical while recording video, it will show up sideways when you play it back. So if you get a kink in your neck, it's Shane's fault!! Brody on the other hand, thinks it looks like he is doing karate on a wall...kind of like Spider-Man! LOL Anyone know how to rotate a video?
Sunday, May 24, 2009
Tuesday, May 19, 2009
Tuesday, May 12, 2009
#10: Delicious and Easy Recipes - For those who must eliminate multiple and/or common ingredients, cooking can be an enormous challenge.
#9: To Be Able to Easily Dine Out - We understand that it is not easy to prepare allergen-free food in the typical busy restaurant kitchen. But it would be nice if we could easily get correct answers regarding what's in the food.
#8: Nut-Free Flights - Airlines cannot control the food brought on board a flight by their passengers, but why must they serve little bags of peanuts? How about crackers, pretzels, raisins, licorice, tortilla chips, or just about any other popular snack food?
#7: Empowered EMTs - In many parts of the country emergency medical technicians do not carry - and are forbidden from administering - potentially life-saving shots of epinephrine. This is ridiculous.
#6: Appropriate ER Protocols - Because up to 40-50% of severe reactions are biphasic, those who go to the hospital for treatment should always be kept under observation for at least 5 hours. Unfortunately many emergency rooms discharge these patients as soon as they first stabilize.
#5: Understanding - We want the people in our lives to understand that we are not a bunch of paranoid hysterical oddballs who are making all of this up for the purpose of calling attention to ourselves and our children. Life-threatening food allergies are a very real condition. And yes, we really do have to take a lot of precautions to keep our kids safe.
#4: Knowledge - Currently the only treatment for life-threatening food allergies is complete avoidance of the offending allergens. Since food, and food residue, is everywhere, parents want to know exactly how to accomplish this seemingly impossible task. What steps do they need to take? What hidden dangers do they need to avoid?
#3: Clear Labels on Packaged Food Products - If there is a chance that a product may contain an allergen that is not included in the ingredient label, the package should say so. But if not, companies should not put "may contain" verbiage on the package.
#2: Safe School Environments - Our kids are not learning disabled and do not need "special education." But they do need a school environment that is not covered with allergenic food residue, and teachers who are prepared to recognize and treat an allergic reaction.
#1: A Cure - Most of all, we want a cure. A real cure - the type of cure that would result in our children being able to eat whatever they wanted to eat, without any risk of an adverse reaction.
Ms. Coss is the author of "How to Manage Your Child's Life-Threatening Food Allergies," as well as two popular food allergy cookbooks, "What's to Eat?" and "What Else is to Eat?" - both of which provide recipes for cooking without dairy, egg, peanut or tree nut ingredients. All three books are available at www.FoodAllergyBooks.com, at Amazon.com, and at various retailers nationwide.
Friday, May 8, 2009
"The treated group had improvements in several eczema scores compared to the untreated group, with improvements only seen in the body (submerged in the bleach baths) and not the head and neck. For example, compared to baseline, after three months the treated group had on average 24% less of their body affected by rash compared to a 3% improvement in the placebo group."
When Brody was younger his eczema was so out of control that his entire body was red, scaly and constantly itchy. Both our allergist and dermatologist suggested adding bleach to Brody's bath water twice a week to try to help kill the bacteria on the skin to reduce the chance of infection. Also, swimming in a chlorinated pool weekly was recommended. At first the thought of adding bleach to my little guy's bath water seemed like it would be torture on his already extremely sensitive skin, but actually we found it to be quite soothing for him. Luckily Brody's eczema is under much better control now, but next time an eczema flare rears it's ugly head we definitely won't hesitate to pull the bleach out again!
Friday, May 1, 2009
There are lots of cute doggie entries (about 430 I believe!), but we would really appreciate it if you would vote for Trixie! http://contest.familyvideo.com/entries#3421
Monday, April 27, 2009
Yesterday I came across a recipe in a magazine for peanut butter banana bread with a gooey layer of chocolate running through the middle of the loaf. Obviously that's not going to happen in this house! So I tweaked the recipe to fit our needs and the result was absolutely delicious! In fact, I may need to bake another loaf today. =)
Sunbutter Banana Bread
(milk, egg, peanut & tree nut free)
1/2 cup flour
1/2 cup brown sugar
1/4 cup Sunbutter (soynut butter would also work)
1/2 tsp. cinnamon
1/2 cup dairy-free margarine, softened
1 pkg (8 oz) soy cream cheese, softened
1 1/4 cups sugar
2 Tbsp flaxseed meal mixed with 6 Tbsp water (to replace 2 eggs)
1 cup mashed ripe bananas
1 tsp vanilla
2 1/4 cups flour
1 1/2 tsp baking powder
1/2 tsp baking soda
1 tsp cinnamon
1 tsp calcium powder (optional)
1 1/2 cups dairy-free chocolate chips
In small bowl, stir the topping ingredients together until crumbly. Set aside
In large bowl, cream the margarine, soy cream cheese and sugar until light and fluffy. Add flaxseed/water mixture and beat well. Beat in bananas and vanilla. Combine flour, baking powder, baking soda, and cinnamon; stir into creamed mixture just until moistened.
Divide half of the batter between two greased 8 x 4 inch loaf pans; sprinkle with half of the topping. Top with chocolate chips. Repeat layers of batter and topping.
Bake at 350 degrees for 40 minutes or until a toothpick inserted near center comes out clean. Cool for 10 minutes before removing from pans to wire racks.
Saturday, April 25, 2009
Overall, a great resource for asthma medication information!
Friday, April 24, 2009
Visit www.tabletopper.com to view all of the convenient products available. And check out this YouTube video for a demonstration of the all-in-one kit!
Tuesday, April 7, 2009
Friday, March 27, 2009
The Nebraska study found that milk was commonly present in products with a variety of labeling terms:
23 of 50 labeled as "may contain milk"
13 of 57 with "shared equipment" language
9 of 40 with "shared facility" language
16 of 29 with milk listed as a "minor" ingredient
1 of 3 with other labeling terminology
In order to keep our food allergic children as safe as possible, we should all remember that if there is *any* type of may contain warning on a package to assume that it could, in fact, be contaminated and avoid it.
You can view the article in its entirety here: http://www.medpagetoday.com/MeetingCoverage/AAAAI/13318
Thursday, March 26, 2009
If you would like to take the time to contact this company and let them know how much this change will affect your friends/family with milk allergic children, you can do so here: http://www.saralee.com/contactus.aspx
Here is the message I sent:
As the mother of a severely milk allergic little boy, I am very disappointed that you have now begun adding milk to all of your breads. I have been buying Sara Lee Honey Wheat bread for many years because it was one of the only brands I felt safe with for my son, but unfortunately I am now left trying to find a new brand to trust.
On behalf of all milk allergic children and their families, I ask that you reconsider the new formula and bring back what was once safe for these children.
Tuesday, March 17, 2009
The boys love to take Trixie for walks every day now that the snow has finally melted. Her legs are so little though that she gets tired out and ends up getting carried back to the house. =)
We did have a bit of a problem last week though. I keep telling Josh not to let Trixie lick his face and to always wash his hands after playing with her. Josh was upset about something, so Brody picked Trixie up and put her by his neck so "Trixie could give Josh some love". Of course she got excited and started licking Josh's neck. A few minutes later he came out into the kitchen by me and the entire right side of his neck was covered with hives! I had him jump in the shower, rubbed some hydrocortisone ointment on the hives, and gave him his nightly dose of Zyrtec. He was itchy for a while, but by the next morning the hives were completely gone. So obviously we now know that Josh is definitely allergic to Trixie's saliva, but he hasn't had any other problems whatsoever since we brought her home. When the boys see the allergist in June we will definitely be talking about those allergy shots. But as long as Josh doesn't let Trixie lick his face he seems okay for now and he certainly has no desire to give up his little pup. I hate to think what would happen if he wasn't on antihistamines twice a day though!